Myelofibrosis & MPNs

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  • Please take a few minutes to tell us about yourself and your personal story. Simply click on  "Reply to Discussion"  to get started. ------------------------------ MarrowCommunity Support Team ------------------------------

  • Newly Diagnoised Primary Myloidfibrosis I have recently been diagnosed with primary myloidfibrosis, intermediate Phase 1. I do not have any symptoms other that a high WBC count (15.1) and a slightly enlarged spleen. My RBCs are dropping, but not yet ...

  • This stuff costs something like $12,000-$14,000 a month. Is it covered by many insurance policies🤔

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    RE: David Sellers

    So how is it going David? You haven't posted in quite some time.

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    RE: David Sellers

    My husband had myelofibrosis Hi David! I wanted to see how your Mylelofibrosis diagnosis was going? I saw your thread here that you were on Jakofi about a year ago. My husband began jakofi in April of 2015. His spleen had enlarged about 10 times its ...

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